What NoTube’s Eating Schools Provide

  • A safe, friendly, and diverse environment that allows your child to learn to eat at their own pace
  • Support for you and your family by our highly-specialized personnel.
  • Confidence and training to develop skills to handle the feeding situations of your child.

Prof. Peter Scheer, MD, and Prof. Marguerite Dunitz-Scheer, MD, the founders of NoTube, have pioneered a methodology to teach your child how to transition to learning to eat in a very short period of time. Over the course of 2 weeks, our interdisciplinary team consisting of highly specialized feeding experts trained on the topic of early eating behavior disorders, tube dependency and tube weaning, will help your child learn to eat without needing a feeding tube any longer.

Since the beginning of 2016, Eating Schools will take place at the NoTube EAT Campus in Graz, Austria! The NoTube EAT Campus is nearby the University Hospital for Children and Adolescents as well as the city centre of Graz and in good connection to airport and main railway station. We offer the an child-oriented atmosphere and ideal environment for learning to eat.

EAT Campus_EN

NoTube EAT Campus
Elisabethstraße 101
A – 8010 Graz

Check the availability of our Eating Schools

Date Open Spots
March 27 – April 7, 2017
April 24 – May 5, 2017
May 22 – June 2, 2017
June 19 – June 30, 2017
July 10 – July 21, 2017
July 31 – August 11, 2017
August 28 – September 8, 2017
September 25 – October 6, 2017
October 23 – November 3, 2017

Why Does The Eating School Work So Well?

What To Expect At An Eating School

 

1

There will be food everywhere. You can rest easy knowing that your child’s special diets and concerns are accommodated.

2

Your child will learn to interact with food in our relaxed play picnics for breakfast, lunch, and dinner.

 

3

In our Eating School your child will learn new behavior strategies. In individual and group sessions our experts will help you to accept changes in your child’s behavior.

4

The entire feeding team is readily available through the duration of the Eating School to answer questions of all kinds and help you take the next steps.

 

5

During the night we are always on call and work with closely with the local hospital should your child’s condition require immediate medical attention.

6

Eating School enrollment is limited to 10 families, so you’re ensured to have all the personal time you need with our feeding team.

Eating School Tuition

There are two financial investments required to enroll in a NoTube Eating School.

ASSESSMENT

EUR120

We provide a detailed medical questionnaire that you complete. Our experts then evaluate your child’s situation and will open the dialogue about whether your child might be a good candidate for one of our tube weaning Eating Schools.

ENROLLMENT

EUR8,320

Once you have decided for the Eating School and passed the medical assessment, you’ll begin to participate in our online platform one week before you and your family arrive for the Eating School. You’ll experience a life-changing 2 weeks during the school. And you’ll continue to receive support for 35 days after the last tube feed after it’s over (30 days after the Eating school for picky eaters). This way, you can rest assured that we will continue to support you no matter what.

The cost does not include accommodations, which must be planned independently. (We are glad to offer recommendations and make this process as simple as possible.)

 

Ask Us About Eating Schools

My child has a special diet. Can you really accommodate it?

Yes, we can. It might be necessary that you bring your own special powder with you, in case your child suffers from a rare metabolic disorder requiring a highly individualized specific diet, but if it’s only food intolerances and allergies like against Gluten, other cereals, specific proteins like nuts (or any specifically tested nutrient) or religiously based diets, there will be no problem whatsoever. On special demand we can also include a dietician in the preparatory or onsite phase.

My child has multiple diagnoses. Is it really possible to teach him/her to eat?

This very important question is addressed in the pre-assessment where our pediatricians and developmental psychologists check the question of suitability very carefully and specifically. If there is any doubt, we will ask you to provide more videos or ask specific questions needing the involvement of your child’s doctors, but this happens very rarely. Nearly all our patients have a very complex medical history and medical issues on very diverse physical levels like breathing problems, swallow issues, other motor or neurological symptoms, sensory perception issues, and more, and we will summarize their potential influences onto the planned transition from enteral to oral feeding.

Should I bring my whole family to the Eating School?

Yes, please do so indeed! The more your child is accompanied by both parents, all his or her siblings and if possible even grandparents, the more the Eating School experience becomes a special family holiday. And like visiting new countries and new cultures, the adventure will stimulate new skills and facilitate the oral development on many different levels! We take special care to include the whole family and are able to take special measures for helping organize special activities also for the siblings. Tube weaning is a process demanding rethinking of a lot more than just mls passing through a tube!

How does the cost of the Eating School compare to other tube weaning options?

The cost of the Eating School is more expensive than the Netcoaching offered by NoTube. However, it is still much less expensive than any other onsite program and has higher success rates.

Find detailed information regarding tube weaning price comparisons here.

Testimonials

We’ve helped over 3,000 children learn to eat without their feeding tubes
  • Meet Élise!
    Tube free!
    Meet Élise!

    Élise and her family are from Germany. Élise was born with a rare genetic defect. Immediately after birth, there were complications. Élise suffered from respiratory distress and had to be artificially respirated. In addition, she was born with a cleft palate and fed via a nasogastric tube from birth. As a result of the long-term tube feeding, Élise developed tube dependency and along with it came a lack of desire to drink and a refusal of food. At the age of 3.5 months, Élise started the Netcoaching program. Within a few days she made great progress. Élise began to drink breast milk and her tube could be removed. Since then, she has been feeding entirely orally.

  • Meet Ayram!
    Tube free!
    Meet Ayram!
  • Meet Lilly!
    Tube free!
    Meet Lilly!

    Lilly, 5 years old, and her family live in the USA.
    She was born with a weight of only 765g in the 32nd gestational week.
    Lilly suffered from severe reflux, which led to food refusal, at the age of nine months a G tube has peen placed through which Lilly has been fed ever since. Her mother Karen decided to sign up for the Netcoachin program and finally, in July 2015, the time had come: after 4 years on exclusive tube feeds Lilly learned to eat. Tube feeds could already be stopped in September. Lilly’s favourite foods are maccaroni and cheese as well as ice cream!

  • Meet Zachary!
    Tube free!
    Meet Zachary!

    Two-year old Zachary and his parents live in Laval, Quebec, Canada.
    He was born with a genetic disorder: Cornelia de Lange syndrome.
    Many children with this kind of syndrome are tube fed, and so was Zachary since his second day of life. His family did a lot of research and finally decided to sign-up for NoTube’s Netcoaching program which started in March 2015. At this time, Zachary didn’t tolerate any food orally. During Netcoaching program, Zachary started to take interest in different kinds of food, discover them in a playful way, taste them and eventually eat larger amounts. Finally his nasogastric tube could be removed!

  • Meet Viktoria!
    Tube free!
    Meet Viktoria!

    Viktoria was born with a complicated defect of the esophagus. When she was 2.5 months old, the stomach was raised and joined to the rest of the esophagus. After this there was frequent bougienage until she was discharged from hospital aged 4.5 months; underweight and with a nasal gastric tube. She still needed a weekly bougienage, and a PEG was placed in March 2014 due to poor weight gain. She could only take small amounts of food and also suffered severely from Dumping-Syndrome. In May 2014 she had an operation for a narrowed Anastomosis. Only a week after being discharged, food entered the pleural cavity through a leak in the esophagus and she had to stay in hospital for six weeks. During bougienage in August 2014 she suffered a perforation of the esophagus and needed another six weeks in hospital. Raising the stomach further was planned for as soon as her health allowed. Oral and PEG feeding was strictly forbidden until after the next operation. She was given a Hickman Catheter and was fed through this. Four months later, in February 2015, it was finally time for the stomach to be raised again. She was to be fed temporarily through an intestinal tube, but the tube had to be removed a few days after the operation due to complications. She came through everything well and we were happy to start a normal life.

  • Meet Gina!
    Tube free!
    Meet Gina!

    Gina was born on June 25, 2010. She was equipped with a nasogastric tube following a spinal cord compression, which was operated in February 2011. She would not eat much and only gained a little weight. After the placing of the tube, Gina began to refuse bottle-feeding. She could not stand enteral feeding and her nasogastric tube was subsequently removed in December 2011. She then accepted bottle-feeding again but she was struggling to grow. She only ate small amounts of food. In October 2012, she was given a gastrostomy tube. The bottle-feeds were interrupted again because Gina was vomiting a lot – she could not bear this tube.

  • Meet Naren!
    Tube free!
    Meet Naren!

    Naren was born at 30 Weeks 4 days gestation weighing 2 lb 5 oz (IUGR and very low weight) and 14 inches. His twin sister was born weighing 3 lbs. He was in the hospital for 9 weeks and was on oxygen for around 5 weeks. He was difficult to feed but came home drinking breast milk fortified with formula. However, the feeding difficulties remained and as time progressed he would not even take the nipple into his mouth. He was in feeding therapy and we had multiple appointments with doctors to find any issues. We found no answers and eventually Naren started losing weight. At around 6 months of age Naren had a g-tube placed since he was losing weight.

  • Meet Sari!
    Tube free!
    Meet Sari!

    Sari and her family live in Sydney, Australia. Following a suction-assisted birth Sari showed no interest in feeding and when, after 3 days, she still wasn’t feeding, the medical team fitted a naso-gastric tube and started enteral feeding.
    Investigations failed to find an underlying physical cause for her eating problems, and she was discharged home without a tube only to be re-admitted due to failure to thrive a short time afterwards, and the naso-gastric tube was re-inserted and feeds re-commenced.
    When the family were told she would have to progress to a PEG tube at 6 months old, they searched the internet for an alternative solution and found NoTube.
    In April 2010, using the Netcoaching approach, Sari was weaned from the tube in 14 days, and has now been tube-free for over 5 years.

  • Meet Josephine!
    Tube free!
    Meet Josephine!

    Josephine (Josie) was a full-term, healthy baby born with tongue tie, which made it difficult for her to nurse. After having the tongue tie revision procedure, she was still unable to drink enough breastmilk to gain weight and always refused a bottle. At one month of age, she had an NG tube placed because she was still below her birth weight. At two months of age, she completely refused breastfeeding and became 100% tube dependent. Josie’s parents had a very supportive feeding team in place at home and did everything within their power to help Josie make positive associations with feeding. Unfortunately, she still refused to drink. With the blessing of their feeding team, they attempted to wean Josie with the Notube Netcoaching Program at 6 months of age. Within a day, she began drinking and experiencing hunger. However, there seemed to be too many changes at once, so Josie let her parents know she needed things to slow down. They stopped the weaning process and tried again at 8 months of age. Within days, she was taking in half of her recommended daily intake by mouth and was completely tube-free in two weeks. Over the entire course of the weaning process, she only lost about 150 grams. Six weeks after her last tube feed, Josie is gaining weight beautifully, enjoys drinking, eating and displays no signs of ever being tube-fed! Here’s what her parents had to say at the completion of the program:

  • Meet Dylan!
    Tube free!
    Meet Dylan!

    Dylan – American. Dylan was born with Hypoplastic Left Heart Syndrome and was tube fed from birth. Dylan and his family worked with several different therapists during his life to wean the tube with no success. Later he was diagnosed with “severe oral aversion.” The pediatrician said that he would be tube dependent until 3 or 4 years of age. He vomited 5-7x daily and had plateaued for weight in the 26th percentile. He would not touch food and would cry at the sight of any spoon, bottle, sippy cup or other food. He was behind in major developmental milestones. He could not sit without support, wouldn’t crawl or try to sit up or stand up. The family turned to Notube when Dylan was 11 months old and started the Netcoaching program in April 2013. On day one of our program, the vomiting stopped and never returned. On day three, he could already sit, crawl and even tried to stand up. On the third week Dylan started to eat food. He never cried at the sight of food anymore. On the fifth week the family did the last feeding with a tube and never used it again. His G tube was removed six weeks later. When his first birthday came around all the family watched overjoyed, as he ate his cake and loved it. After 3 months of weaning, Dylan shot up to the 82nd percentile for weight. Notube took a child who was strapped to a chair for most of the day, miserable because he was constantly vomiting, who was unable to explore his world because the tube was hindering milestone achievement and totally gave him his life back. It was an amazing transformation.

  • Meet Bommel!
    Tube free!
    Meet Bommel!

    Bommel and her family live in the Netherlands. When she was two weeks old she was hospitalized due to failure to thrive, hypotonia and respiratory problems. She was not able to sustain herself, so she got a nasogastric tube that was replaced by a gastrostomy button after a year. Bommel drank small portions from a bottle by herself until she was about 8 months old. Then she refused and was completely tube fed. During that time she did accept being fed by spoon. Drops of pureed fruit at a time. NoTube was recommended to her parents after posting a blog on being tube fed. They started Netcoaching in May 2014. Within one week of starting the program Bommel became tube free and has been ever since! After surgery in December 2014 she had difficulty starting to eat again. The NoTube Lean to Eat program helped Bommel become her old, eagerly eating self within days of starting the program. Bommel can eat everything now, fluid & pureed. Her favourite is vanilla custard!

  • Meet Everett!
    Tube free!
    Meet Everett!

    Everett and his parents live in the United States. Everett was hypoxic at birth. He was put on several ventilation machines throughout his stay in NICU. Doctors believe Everett’s severe oral aversion and GERDS result from the trauma of being intubated. When he was 8 months old, Everett left an intensive, inpatient feeding program with a mini g-tube. Beginning March 2015, 15-month-old Everett was enrolled into NoTube’s Netcoaching program. Almost immediately, his GERDS disappeared. After the first week in the program, Everett would only drink water. Then, he moved onto swallowing yogurt and fruit purees. By June 2015, Everett was tube free, and even began accepting some solids! There are not enough words to describe our joy! Seeing our baby eat is priceless! Thank you, NoTube!

  • Meet Piper!
    Tube free!
    Meet Piper!

    Piper and her family are from New York, USA. Piper was born at term, and suffered from obstructive sleep apnea, and aspirated all fluids. Physicians also suspect she has a submucous cleft palate. At 3 weeks old Piper was given a NG tube. She was unable to tolerate large volumes of feeds. Piper was put on a 24 hour feed for the next 3 months, with no oral feedings. Piper was transitioned to bolus tube feeds at 3 months old. She projectile vomited most feedings. Her family attempted oral feeding once she was no longer aspirating (at the age of 3 months). Piper would not take any oral feeds, and cried at the sight of the bottle. At 4 months old Piper was accepted into the net coaching NoTube program, and was tube free within 13 days!

  • Meet Nova!
    Tube free!
    Meet Nova!

    Nova and her family live in Kungsbacka/Sweden. When she was born, she was diagnosed with arthrogryposis, a rare, neuro-muscular disease, which mainly affects her extremities. Nova drank little and very slowly from the beginning. When she was 4 months old, a nasal tube was placed, because she stopped the intake of food altogether due to a human parainfluenza virus infection. She never ate or drank water orally any more, because she became tube-dependent within a very short period of time. When she was 8 months old, a PEG button was placed. When Nova was 1 year old, the family contacted NoTube. After 11 months of working together, Nova is now tube free and likes to eat and drink very much. She still has to learn to accept new consistencies, but she is on the right track.

  • Meet Bennet!
    Tube free!
    Meet Bennet!

    Bennet, his siblings and his parents live in the US. Little Bennet was born with hypoplastic left heart syndrome, a severe congenital heart defect, in which the left ventricle of the heart is severely underdeveloped. An open heart surgery was necessary. Due to his severe medical condition, he received a g-tube 5 weeks after birth. After a successful heart surgery, he was allowed to eat orally, but Bennet didn’t succeed in the transition to oral feeds because he had developed a tube dependency, resulting in oral aversion, food refusal and recurrent vomiting. In January 2014 when Bennet was 16 months old, his parents signed up for NoTube’s Netcoaching program. Bennet learned to eat immediately and all tube feedings could be stopped within less than one month. Bennet did well during the wean, he was happy, playful and active all the time. He started eating different solids (veggie straws, pizza, pasta…), semi-solids (pudding) and drinking water. Since then, Bennet is doing well and the whole family’s life has changed for the better. Bennet is much happier without tube feeds. He is able to participate in family meals and enjoys different kinds of food.

  • Meet Ezra!
    Tube free!
    Meet Ezra!

    Ezra lives with his parents and his older brother in the Netherlands. At the age of 5 months, he received a nasogastric tube due to heavy reflux. During the phase of enteral nutrition, he suffered from severe negative side-effects (gagging, vomiting, etc.) and developed an oral aversion. He had to be completely tube-fed eventually. His parents decided to register him for the Eating School in Austria, which the whole family attended in February 2015. Soon after, Ezra began to make big progress and his oral intake improved. Ezra left the Eating School without his feeding tube and has only been eating orally ever since! In the course of the tube weaning, he was also able to take further important steps in other aspects of his development.

  • Meet Zoe!
    Tube free!
    Meet Zoe!

    Zoe, her mother Maria and her family from the United States registered for NoTube’s Netcoaching program in May 2010. Zoe had some very severe cardiac problems, which had made enteral nutrition necessary for the first month of her life. As an unintended negative side effect of the tube feeding, Zoe developed reflux and vomited and gagged a lot. In June 2010 she got her last tube feed and to the delight of her parents, Zoe has been tube free ever since, while the negative side effects vanished completely.

  • Meet Lukas!
    Tube free!
    Meet Lukas!

    Lukas and his parents, Andrei and Aubri, from Honolulu in the United States registered for NoTube’s Netcoaching program in September 2010 . Lukas suffered from: Hypoxic ischemic encephalopathy, global diffuse brain damage, seizures, high blood pressure, aspiration pneumonia (once), dysphagia and reflux. Previous attempts from various institutions to wean Lukas off his feeding tube failed. The Netcoaching program was started when Lukas was 3.5 months old. The experienced staff of NoTube coached Lukas and his parents through the weaning process. After three weeks Lukas’ feeding tube could be removed as he was eating like a champ! To delight of his parents, he has been tube fee ever since.

  • Meet Melissa!
    Tube free!
    Meet Melissa!

    Melissa and her family live in Canada. In March 2010 they participated in the Netcoaching program. Melissa was born with a palsy of the N. phrenicus sinistral. Because of the severeness of her disease, a NG-tube was placed, which led to better growth, but unfortunately also to a tube dependency. As a result of this condition she vomited, gagged and sweat a lot. Furthermore the whole family system suffered, thus, the family contacted Notube’s experts, who defined Meliassa as suitable for the Netcoaching program, which was started on March 10th, 2010. Two weeks later, Melissa had learned to eat and her feeding tube could be removed. Since then, Melissa and her family are tube free and they enjoy their life again.

  • Meet Daniel!
    Tube free!
    Meet Daniel!

    Daniel and his parents Amanda and Brendan from New South Wales in Australia registered for NoTube’s Netcoaching program in March 2011. Daniel is a monochorionic twin who suffered from severe intrauterine growth restriction with reverse end diastolic flow, due to a marginally inserted umbilical cord to the placenta. He was born in the 29th week of gestation by emergency caeserian section. These circumstances made NG-feeding necessary. Daniel showed a lot of negative side effects like vomiting, retching and gagging. When Daniel and his family started the Netcoaching program, he had his tube for already 10 months. Only one month later, Daniel was tube weaned and he has been tube-free ever since.

  • Meet Reagan!
    Tube free!
    Meet Reagan!

    Reagan and her parents Tracie and Tim from the United States registered for NoTube’s Netcoaching program in December 2010. Reagan was born with a congenital heart defect: Double inlet left ventricle, aortic atresia, Laevo-transposition which made enteral nutrition necessary. One week after birth she already had her first surgery, followed by another in October 2010. As a negative side effect of the long term tube feeding, Reagan got NG-tube dependent, so her parents contacted the NoTube team in December 2010 and on December 12th, when Reagan was 5 months old, the Netcoaching program started.

    NoTube’s medical and psychological professionals coached Reagan and her parents through the weaning process and after only 4 days in the program she got her last tube feed. Reagan is tube weaned since then, which is a blessing for the whole family.

  • Meet Ethan!
    Tube free!
    Meet Ethan!

    Ethan and his parents live in the USA. They registered for the Netcoaching program end of May 2012. Ethan was born with a CDH, which was repaired on day 1. Furthermore a short bowel obstruction removal was performed. At the age of 2.5 months, Ethan got a NG-tube. At the beginning of Netcoaching he was 100% tube fed. His doctors recommended a PEG-tube, but his parents decided to sign up for the Netcoaching program. After a few weeks of coaching, Ethan ́s tube could be removed and he has been tube-free ever since.

  • Meet Manuel H.!
    Tube free!
    Meet Manuel H.!

    Manuel H. and his parents are from Germany. Manuel was born with Down Syndrome and a cardiac defect. Because of Manuel’s severe sucking problems, he received a nasogastric feeding tube right after his birth and was fed by tube since that time. With assistance by the Notube team Manuel’s insurance company has confirmed to cover the costs for the NetCoaching program. So he was able to participate in the online tube weaning program in August 2013. At this time, Manuel was 19 months old. Short time after the start, Manuel started to make good progress and began to eat age appropriate food in a sufficient way. On October 19th, 2013 he was finally weaned off his feeding tube and has ever been eating orally since this time.

  • Meet Sarah!
    Tube free!
    Meet Sarah!

    Sarah and her parents Jeffrey and Judy from Queensland, Australia registered in for NoTube’s Netcoaching October 2010 program. At the age of 3 months, Sarah got her NG-tube due to failure to thrive. She received mainly overnight feeds. Sarah ́s mother found out about NoTube while researching the internet for the best possibility to wean Sarah off her feeding tube. After five days of working with the NoTube team, Sarah got her last tube feed and to the delight of her parents, she has been tube free ever since.

  • Meet Elsa!
    Tube free!
    Meet Elsa!

    A few months after her birth, Elsa from France got a nasogastric tube due to food refusal. Subsequently, a G-tube was implanted by surgical means. Elsa showed severe side-effects of tube feeding: massive oral aversion and frequent vomiting. Her distressed parents decided to participate in the tube weaning course in Mayenne with 4.5 years old Elsa. During the course, Elsa learned to eat orally again. In July 2013, her G-tube was removed!

  • Meet Charlotte!
    Tube free!
    Meet Charlotte!

    Charlotte lives in France together with her parents and her older sister. She was born with a genetic defect and had severe respiratory problems after birth. At the age of four months, she lost weight, so she got a nasogastric tube, followed by the insertion of a PEG button. After being in touch with Valérie of the NoTube team, the family decided to participate in the tube weaning course in Mayenne in 2013. The three-and-a-half-year-old girl made great progress regarding her oral intake and after only a few days in the program, she was able to sustain herself entirely by oral means. Even her PEG button could be removed in Mayenne, a fact that makes little Charlotte proud to this day. Since that time, Charlotte eats completely orally and the PEG button stayed in Mayenne altogether.

  • Meet Barnabás!
    Tube free!
    Meet Barnabás!

    Little Barnabás and his parents live in Hungary. He was born with an oesophageal atresia requiring tube feeding until the surgical repair. After Barnabás was declared as suitable for the Netcoaching program, he started the wean end of November 2013. He made rapid progress and after only 2 weeks, tube feeding could be terminated. 2 months after treatment start, his feeding tube could be removed. Since then, he loves to eat and eats quite a lot. His favourite dishes are semolina porridge, carrots, pumpkin and ginger bread!

  • Meet Ella!
    Tube free!
    Meet Ella!

    Ella and her family are from Zurich, Switzerland. Ella was born with Down Syndrome, Oesophageal Atresia and a cardiac defect. The oesophageal atresia was successfully repaired on day 3 of Ella’s life. However, due to the long term tube feeding Ella developed a tube dependency. She was completely tube-fed from the beginning of her life until she was about 7 months old.

  • Meet Élise!
  • Meet Ayram!
  • Meet Lilly!
  • Meet Zachary!
  • Meet Viktoria!
  • Meet Gina!
  • Meet Naren!
  • Meet Sari!
  • Meet Josephine!
  • Meet Dylan!
  • Meet Bommel!
  • Meet Everett!
  • Meet Piper!
  • Meet Nova!
  • Meet Bennet!
  • Meet Ezra!
  • Meet Zoe!
  • Meet Lukas!
  • Meet Melissa!
  • Meet Daniel!
  • Meet Reagan!
  • Meet Ethan!
  • Meet Manuel H.!
  • Meet Sarah!
  • Meet Elsa!
  • Meet Charlotte!
  • Meet Barnabás!
  • Meet Ella!

Download Ebook: Eating schools: Everything you need to know

The goal of NoTube is to help your child sustain itself with oral feeding. Our Eating School is an online and offline therapy program designed to make it possible.

You will learn:

  • What is an Eating School and what happens there?
  • Who are the people running the Eating School?
  • How can you afford the Eating School?
  • How can you get in touch with alumni of an Eating School?





eating school notube